At the start of the year doctors weren't sure whether I'd still be here to finish the year. I wasn't able to walk a few metres without collapsing or even do the simple things for myself. I wasn't sure whether I'd be able to walk without the aid of a wheelchair again and go back to my old lifestyle. With amazing response to treatment and a positive mind set I am back on my feet and have made a massive improvement over 10 months. Gone from not being able to walk a few metres to vigorously exercising and I have never felt better, some doctors would say it's a miracle. I haven't really acknowledged how strong I've been. Just goes to show that no matter who doubts you as a person, as long as you believe in yourself you will succeed 💫 #pulmonaryhypertension#phpatient#10months#motivation
Aayden is home from the hospital. Everything went well. They found some inflammation & swelling so they upped his meds and started him on a new inhaler. They did a biopsy on the mucous back up he had in his lungs, and we get the results back in a month or so. Thank you to everyone who kept him in your prayers and called or texted me with concerns. #AaydenW#asthma#pulmonaryhypertension#allergies#hesafighter#lovehim#mamasbaby
Always a blast when I have more breathing issues than normal. Especially when I’m getting ready for bed.. but my body had other plans. A long breathing treatment. Started about 15 mins ago, took awhile to start working. I have a request for the medical community, with those who work within the pulmonary aspect of things and know nebulizer machines. I’m tired. More so now thanks to all this. It’s exhausting. I want to just go to sleep. But I can’t. So I request that nebulizer machines have a built in timer. So i can fall asleep with out leaving my machine on for hours on end. This would also be very helpful for when I wake up short of breath in the middle of the night and need a breathing treatment. Sleeping with this mask isn’t a big deal. I’ve done it many times. #adventuresofbreathingandemoji#mychdstory
"Bless your heart" in the south means someone feels sorry for you or that they feel bad and aren't sure how to help you. I hear this so much now. It's kinda weird having someone look at you and ask you if you are ok or give you some look of pity and tell you "bless your heart" to your face. It really confuses me because I don't feel sorry for myself, so why should someone else? I have never minded, as long as it's done with respect, people asking questions about my scars, oxygen, or even Zanna. I think it's a good way to spread awareness about pulmonary hypertension and about Inogen. But I don't want people walking away from me with a look of pity in their eyes or thinking I have no quality of life. I want people to walk away and think that I won't let it stop me and that I'm thinking positively. Yes, there have been times where I have my pity parties but it was for one day and one day only. After that I moved on and learned to life with my new normal. And while there are hard days and days I wish I didn't have oxygen, but I know that without it I wouldn't be able to do the things I want to do. And honestly there are days I have it on and freak out thinking I forgot it! But the main thing is, is when you see someone on oxygen or fighting an invisible illness don't pity them. We don't need pity. We need people who encourage us, fight with us, and give us a shoulder to cry, but never pity. And I know that I will hear "bless your heart" for the rest of my life. But just know that I'm stronger then any pity you give me and I will not let myself believe it. To anyone who gets pity just know they probably have no idea what else to say so just try to smile and tell them I'm doing good. And know that you are a stronger fighter then most people and you are never giving up! And that is what matters most! #stronger#fighter#nevergiveup#unstoppable#fightlikeawarrior#pity#dontneedyourpity#supportsystem#oxygen#pulmonaryhypertension#chd#heartdisease#tricuspidatresia#smile#warrior#blessyourheart#zanna#spoonie#chronicillness#invisibleillness#strong#standupforyourself#southern
My new song ‘Rise’ is now live on YouTube.com/Chloetemtchine or click on link in my bio 😬 also, if u like the song, pls vote for it on the @megastarapp - it’s part of a Spotlight competition! All based on votes! 🤗 #music#rise
Sadness overwhelms my heart as an amazing beautiful inspirational little soul leaves us today. To humayra and all her family.. we thank you for making us phaware and allowing us to journey on with you in this phight. May Allah grant her jannatul firdous, place sabr n contentment in the hearts of her family n give her mother all the strength insha-allah. She has inspired hope in soo many.
Pulmonary hypertension is a reality for so many and it's time we all stand up and phight together. BE PH AWARE #bephaware#phighter#pulmonaryhypertension#phaware#phkidssa
I've been quite humbled by all the love and support I've been receiving since I shared my recent diagnosis... from near and far (some anonymous even!) and I want to take time to say thank you. My heart feels overwhelmed by the prayers, words of encouragement, gifts and just all the love in every form of the verb. Please know that my hope is to pay it forward in every way! 💞 you ALL know who you are (even if I dont even know you) . And i am ever grateful for your energy and loving kindness! This cute hat, scarf and love note all the way from colorado! #gratitude#humbled#blessed#phaware#pulmonaryhypertension#everydayisagift#pah#pulmonaryarterialhypertension#PHight
Strength is wishing with every part of your being that you didn't have to walk this earth without your child but doing it anyways.
No one is sent by accident to us. Little Humayra was sent for a short while and brought along with her so much of blessings and love.
May Allah grant sabr to her parents and family.
Stella Mae Polster passed away peacefully in her parents’ arms on Friday, December 8th at Children’s Hospital of Wisconsin. During her fleeting six months of life, this angel warrior greatly touched the lives of countless people near and far and stole the hearts of all.
Stella was born exactly six weeks early on June 1st, 2017 weighing only 1 pound 14 ounces, with ten fingers, ten toes, one extra chromosome, and sparkling eyes that radiated joy. From the very beginning, Stella Mae defied the odds time and time again. Her strength and grit knew no limits and she was known to keep her family and medical staff on their toes. She bravely endured a number of procedures and health issues and astounded her care team with her tenacity and continued resilience. One could never underestimate this bright shining star; she was fierce, brave, affectionate and powered through every poke, prick and procedure like a true t 21 galactic warrior.
Stella was a busy girl whose hands were always moving like her daddy. Like her mommy, Stella loved people and the kisses, smiles, and snuggles that came along with them. She adored her NICU nurses, octopus, pacifier, and shook her “booty booty” upon hearing music.
Stella is deeply loved by her mommy Tracy Broekman and daddy Brian Polster, big sister Lillian June, big brother Caeden, her grandparents, her aunts and uncles, her cousins, and countless others too many to list but not forgotten.
The family is eternally grateful for the staff at Columbia St. Mary’s and Children’s Hospital of Wisconsin for the incredible care, compassion, and support provided to Stella and the entire family. They would like to extend their unending appreciation to the superhero nurses who fought Stella’s obstacles with immense strength and love.
A memorial visitation celebrating Stella’s life will be held at Krause Funeral Home at 7001 W. Brown Deer Road, Milwaukee, WI 53223 on Thursday December 21st from 10 to 11:30 am with a reception to follow at Café Hollander-Mequon from 12 to 2 pm.
In lieu of flowers, donations in Stella’s memory can be made to Stella’s extraordinary friends and extended family at GiGi’s Playhouse Milwaukee.